Monday, December 10, 2012
|Thanksgiving dinner with turkey, cranberries, mashed potatoes, gravy and even a little champagne.|
|Decorating the live Christmas tree my brother's family sent!|
Friday, November 23, 2012
Thursday, November 15, 2012
|PJ and Gidget at the Studio City Farmer's Market|
Sunday, November 11, 2012
Sunday, November 4, 2012
I will walk today
because you can't anymore
Your granddaughters will walk today
because they wish you could read them a story
My husband will walk today
because he knows my tears in the middle of the night
Friends will walk today
because they have taken the time to listen to our story
Strangers will walk today
because they share our fate
We will all walk today
when you are crying out
when you are alone in your bed
when you are being propped up and spoon fed your breakfast
when you are swearing as your diaper is changed
when your smile turns into a desperate frown
when the music plays in your room to calm you down
And even though you don't know who we are,
we will walk today
because if you could, you would walk with us.
Donations of any amount are gratefully received. THANK YOU!
Saturday, November 3, 2012
Friday, September 28, 2012
|Guess which one is for Nana. (the heart shaped rock)|
Wednesday there was no school. No rushing around, no homework, no hot asphalt to line up on. I took the kids to Leo Carillo State Park which is a little farther than where we usually go, because it has tide pools. A place where we could wear our Keene's (thanks Dad!) and walk in the ocean and find starfish, tons of crabs, and a weird pink cucumber kinda thing. A place where the girls flew little kites on their own for an hour and a half, engaging only with the wind.
No pencils, no paper, and no schedules, except for the tide.
We stopped by Nana's on our way. We woke her up, kissed her and told her we were going to the beach. We told her what we were bringing and that we wished she could go with us. Peggy responded, with an occasional yes, and a smile. We put her beach wave music on her ipod and the girls hugged her. Gidget told her we would bring her back a beautiful shell. They looked all day for a perfect one for her. Empathy, compassion and thoughtfulness are just a few of the things the girls learned on this bright and lovely, windy day off from school.
|I feel that we have all learned a lot from Peggy, we have studied, we have been tested and we are ready to graduate. |
Please, we don't want need to go to graduate school.
Thursday, August 30, 2012
But, I don't feel like it.
I don't want to walk, I don't want to ask for money. I feel hopeless. I don't understand why it's people like us, in the front lines that have to do all the asking. I don't want to fight, I don't want to beg, I don't want to celebrate. Maybe tomorrow.
Monday, August 27, 2012
|David, Lois, Sharyl, Ashley, Peggy and Christopher|
|After Studio LOL|
|Before Studio LOL|
Monday, August 20, 2012
Saturday, August 11, 2012
Then I saw this wonderful video that I posted previously about music of this man's era. Check out this cool movie, Alive Inside.
I needed the music that was still in her, not what was on our playlist. We didn't have a lot of music in my house growing up. She has lived a long time. What is her genre? I asked myself as I scanned the itunes playlists. She loves row row row your boat...what genre is that? What label? Who the heck sang it first?
It took me way too long to figure out how to get rid of all the apps, and old playlists and the confusing things, like clouds and share and twitter, to make her new playlist which made me come to the conclusion that this must be why we get Alzheimer's, our brains are all mucked up from the years of input until finally all the wires get overloaded and what's left are a few little notes...row row row your boat. Just try and say that without singing it's tune, or this one, Twinkle twinkle little star...
So, along with a new playlist from the 40's Gidget and I recorded this, and she smiled and mouthed the words.
Wednesday, August 1, 2012
Tuesday, July 24, 2012
Tuesday, June 5, 2012
|Waterbury, Connecticut where Peggy grew up.|
She's with me, or her sister. It doesn't matter, she is with family and that means she is home. While this is wonderful and heartwarming and made me smile and cry. It makes me cry for a different reason. I don't want to be the only thing she knows. It's too much.
Thursday, May 31, 2012
|"Faded" for Illustration Friday|
Tuesday, May 15, 2012
Saturday, May 12, 2012
Thursday, May 10, 2012
Please sign the petition.
I urge you to join me and visit the Alzheimer's Association today!
If the text above does not appear as a clickable link, you can visit the web address:
If you no longer wish to receive email messages sent from your friends on behalf of this organization, please click here or paste this URL into your browser: http://act.alz.org/site/TellFriendOpt?action=optout&toe=958c09f0f748d4f5d5e9c43fa5bed7d95ea55b7f3559f1ed1ccd4c50a5c00593
Tuesday, May 8, 2012
Thursday, May 3, 2012
This is hard to explain, but seeing him gave me the feeling as if I was in Europe, or Africa traveling for a long time and I just ran into someone from my home town. Someone with whom I can relate to in this foreign landscape. Someone who speaks the same language, with the same accent, someone who knows why things are different here, and how you can even taste it in the water. He know's this because he is from the same place I grew up, the place where we had Moms.
Tuesday, May 1, 2012
Then I'd see her the next day, up and chewing her meat, smiling, like everything was totally normal. Good news or bad news?
But, every time I walk in the door. "Hi Mom" I shout out and she says "Oh, hi Lois"(funny meeting you here) or "Hi Lois" (I'm just having this stranger spoon feed me my dinner, I'll be right with you.) I can't believe it. How does she recognize me? She seems to have no idea what is going on, where she is, that she is even in a wheel chair. How does she know it's me? To talk to her, you have to stand right in front of her, prop her up because she's stiff as a crooked board then try and make eye contact, and then it is still not very clear if she is even looking at you. But she seems to knows it's me. Then I think, if she does know it's me, how much does she know or understand or FEEL. This seems like very bad news.
But how does she know it's me? How does she recognize me, when she can't seem to see 12 inches in front of her face? I finally figured it out. It's my voice. When I shout out "Hi Mom" she recognizes my voice, and goes to that place, that comfortable place where I exist. I don't know where, but somewhere in there. I exist. This is good news, I think.
Monday, March 26, 2012
What I mean is that even a minute of my time can be enough. I'm loving Peggy again with a full heart. I've been stopping by more frequently, for less amount of time. The last three times have been good. I like to hug her, let her know I'm there. She lights up. A minute to her could mean an eternity, a day, a month, maybe a second, who knows? It's just that I happen to be living in real time, filled with children, friends, work, chores and there never seems to be enough hours in the day, let alone minutes. But, when I stop by on my way from this or that to see how she is, I find the real value of a mere minute, by her smile.
She's still my Mom, and seems as though I'm still learning about life from her.
Monday, March 5, 2012
Tuesday, February 7, 2012
Monday, February 6, 2012
Because there is so much to learn from the silence in this recording, in the stuttering, in my voice, and in Sunny's. Our story is not compelling to listen to, yet if you do you'll find the story in the silence and unanswered questions. And then there is Sunny's voice, a sweet 8 year old, and how she communicates and expresses her feelings about what it's like to have a "Nana" with Alzheimer's Disease. This is why I came to StoryCorp. I didn't do this to record a memory like so many people who come to record friends and family at StoryCorps. This is the coolest reason to come to StoryCorps, and I urge you to sign up if you can. This is not something I need to, or care to remember. I wanted our story to be shared with others. I did this to express the need for a cure. I want the world to hear what it's really like at the end stages of Alzheimer's Disease.When you can't communicate with your mother except in fragments, pieces and lost details. What it's like to have lost someone dear, when they are sitting right there in front of you.
Here is the recording....StoryCorp podcast
At the end of the recording if you can bear listening long enough you will hear Peggy say
"I love you, too."
Tuesday, January 31, 2012
link about them and why they are doing this.