Friday, December 26, 2014

Christmas Music Memories

The power of music... for all of us.

  I can't hold a tune, I don't understand chords, hated the piano and don't know the right words to most songs. That doesn't matter, music has a way of reaching inside and touching all of us in different ways and we experienced that with great surprise and joy on Christmas Day.

 The whole family went over to Peggy's yesterday and we brought presents for her, and gifts for her care takers.  I expected the same sad, nothing response from Peggy that has been the norm lately.  Sunny had been practicing her ukulele at home and we were running late. I told her she didn't have to stop, she could just bring it along (secretly hoping, she might play for Nana and some of the other residents at the party.)  When we got there she wanted to leave it in the car. She didn't want me to FORCE her to play in front of everybody, which I NEVER do, I only beg.  I promised her I wouldn't and I didn't.  I actually thought it would distract her from the odd smells, the unpleasantness of the details, and the scariness of what Alzheimer's has done to her Nana that she is so keen to notice now that she is almost twelve.  Gidget who is seven bounds into the place. She jumps on the bed, touches everything, hugs Nana, dances around and enjoys visiting, even if it might  only be for the slight chance of sneaking a piece of candy.

 We tried to act normal as if Peggy could hear us, see us or even understand us.  Then a couple of notes started to fill the room.  Sunny tuned her strings with my iPhone and looked up classic Christmas songs... and then a Sing-a-Long magically appeared.  It lifted us out of the awkward and unfamiliar place that Alzheimer's has placed us.  Each song took out the details of that room and into another dimension of memory, feeling and love along with the details of my life that the music rendered.  Allen crooned Silent Night which made me cry, as I remembered snowy winters and luminaries lighting up the night as we caroled our way through my neighborhood growing up in Wheaton, IL and lucky I felt to share my life with his beautiful voice.  Gidget re-enacted her second grade Holiday Concert with flair and adorable hand motions, the memories she will have of her happy times at Carpenter Elementary School just forming.  And Peggy! She came to life, smiled and tried to sing to Santa Claus is Coming to Town.  Which we sang more than once and exaggerated every note with glee.  Before we left, Sunny sang her own sweet rendition of All I Want for Christmas is You and I swelled with love and hope that music will be her guide and friend that she can rely on to get her through all the details of this lovely, sad, and wonderful life.


video
Happy Holidays dear friends and family.  Keep singing, laughing, crying and being there for each other, because that's what memories are made of.

Love, Lois

Saturday, December 6, 2014

Curing Alzheimer's with Grape Juice

Studio LOL is an amazing place run by Ryan and Katie Chase in Studio City, CA.  Kids can laugh, learn to be confident and have fun.  My kids have been playing with these guys for over 4 years.  Every year the teen group puts on a charity show, this year they chose Hilarity for Charity.  So we took full advantage and set up shop!  


Please check out www.studiolol.com for more info

Milestones

I haven't posted in a long time, but we are still here, still celebrating life with Peggy.  It was her birthday August 30th and I painted this picture after spending time with her that day.  I was feeling sad and kinda lonely for the both of us, because I knew I was the only one in the room that knew it was her birthday.









Alzheimer's takes milestones and turns them into a big jumbled pile of rocks.


To my surprise I came home, took all those rocks and put them in order and made this painting.  It has 84 candles celebrating each and every wonderful year Peggy has been around.  It makes me happy, not sad to look at it.




So happy, that I even got it framed and hung it in her room.

Happy Birthday Peggy, we love you!

Sunday, June 22, 2014

A Purple Grape Juice Stand!

When life gives you Alzheimer's, drink Grape Juice!  You can donate to through our virtual grape juice stand.  Just click right here.



Saturday, June 21, 2014

The Longest Day

The Longest Day is an awareness campaign by the Alzheimer's Association.


When I close my eyes at night, my mind opens into Peggy's world.  I begin to think how has this happened to her brain?   I see her lying in that bed, close by, but so far away.  Why is this happening to so many people?  Will it happen to me, or my children?  Someone else I love? Why is it lasting so long? The questions just keep coming in rapid fire one after the other,  how will I feel when it ends?  Have I done enough, why isn't there anything else I can do, how can I accept this as her fate...

Alzheimer's is so beyond memory loss, it's the abandonment of life as we know it. What is life if your not living in it?

HOW IS THIS ACCEPTABLE?

Here is a view into just a few minutes of one of Peggy's days.  I show this with hesitation, love and the hope that if people really knew what Alzheimer's turns into at the end of these very long days, maybe we could get that much closer to a cure.










Thursday, April 17, 2014

January, February, March and now it's April

Happy St. Patrick's Day!
Green Juice and Irish Music






Alzheimer's Prevention Inititative

It's been so harsh just watching Peggy lie in her bed day after day, and nothing I can do can help her anymore.  Not my voice, not flowers, gifts, music or her grandchildren.  I found this.  It gives me hope and I can not wait to participate, I wish they would call me today.  It's called the Alzheimer's Prevention Inititative, and it's a way that I can help prevent Alzheimer's for future generations.

Here is a link, they also have a Facebook page.

END ALZ NOW
Alzheimer's Prevention Registry Logo

Wednesday, March 26, 2014

It's been a while...

It's easier to not blog that it is too blog about Alzheimer's these days.  I'm not giving up the fight, or the advocacy or the love.  I'm just taking a break.