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Stories, pictures, thoughts, love and life about Peggy Faganel, and a place for Alzheimer's understanding, fundraising, awareness, ideas, talk and help.
Tuesday, February 12, 2019
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Tuesday, February 5, 2019
HelloFax, Someone Sent You a Fax
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Welcome to HelloFax, Someone Sent You a Fax
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Monday, January 28, 2019
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Tuesday, January 22, 2019
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Monday, March 28, 2016
A must share to help raise awareness
I Got That Dreaded Call.
Alzheimer's has so many faces, I have been following this family's journey and her latest post is so important to read and share to understand the true need for a cure. Please read and share.
Alzheimer's has so many faces, I have been following this family's journey and her latest post is so important to read and share to understand the true need for a cure. Please read and share.
Saturday, March 5, 2016
Her bracelet
I'm not a fancy gold bracelet kinda gal. I'm sure to scratch, get paint all over, or most likely lose it. But what's the point of keeping the good stuff tucked away in a drawer, or only bringing out her fancy china for company? If I get a little paint on it, or a dish breaks while having a tea party with my daughter it'll have the wear and tear of real life and these are the joys I'd love to share with Peggy now. So I try to enjoy the things we do have and I wear her bracelet all the time now.
It always looked so pretty on her, and it still does.
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| Fancy jewelry and the good china |
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| A very special tea party with Gidgey and Spots when she was 2. |
Labels:
#ALZ,
alzheimers,
bracelet,
end stages,
loispeggyblog,
wear and tear
Friday, February 19, 2016
It's been a long time...
It's been a long time since I've posted. It's been a long time with this disease. When Peggy
was diagnosed, the average life expectancy was 8 years. She has had Alzheimer's for at least 13.
How do I know? I measure it by my oldest daughter's birthday, she just became a teenager on
February 11th. My foreboding thoughts 13 years ago came true when my Mom didn't come see me and my new baby. She was distant because her mind was failing and confusing her, she couldn't make connections either physically or emotionally.
I haven't felt like writing about this any more. It's become so deeply personal and lonely
that sharing has become difficult. I feel completely defeated. I don't try to understand, help, research, raise money, awareness or what not. I just try to be there. So, I am. We are. I'm there for my Mom, to the bitter end. Thank you everyone for listening and empathizing, I do care and I do want to fight. I just hope I'll have more strength to fight this battle once it's over, if ever.
I don't really want anyone to see my Mom like this, but I have the courage to share it, to raise awareness. End Stages need to be in the conversation about the care, research and end to Alzheimer's.
was diagnosed, the average life expectancy was 8 years. She has had Alzheimer's for at least 13.
How do I know? I measure it by my oldest daughter's birthday, she just became a teenager on
February 11th. My foreboding thoughts 13 years ago came true when my Mom didn't come see me and my new baby. She was distant because her mind was failing and confusing her, she couldn't make connections either physically or emotionally.
I haven't felt like writing about this any more. It's become so deeply personal and lonely
that sharing has become difficult. I feel completely defeated. I don't try to understand, help, research, raise money, awareness or what not. I just try to be there. So, I am. We are. I'm there for my Mom, to the bitter end. Thank you everyone for listening and empathizing, I do care and I do want to fight. I just hope I'll have more strength to fight this battle once it's over, if ever.
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| She made this beautiful blanket. |
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| Catholic's now call Last Rites, The Anointing of the Sick. |
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| Having morning coffee with my Mom |
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| She's got David Bowie eyes. |
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| So many amazing people keep catapulting into the unknown, while we stay down here. |
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| I've been organizing our family photos, so many memories. |
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| I am and always will be her advocate! |
Wednesday, November 25, 2015
Holidays
I didn't decorate Peggy's room this year for Halloween. Ghosts, skeletons, witches and candy (that she can't even eat) just aren't fun anymore when you've been staring death in the face for the last three or four years. Please don't be offended as I say that like it's no big deal, making a joke or a mockery of the situation. My honesty is ripe with trying to understand how to navigate my world with Peggy still in it. I'm with her as every holiday, anniversary, world event, reunion, birthday and Halloween comes and goes. I've learned that these events don't have the same meaning they used to. Why? Because they all mark the passage of time. Time doesn't exist here as we used to know it. Time surrounds us now with a celestial, infinite wisdom that has moved beyond the present. When I really hug her time will stop, close in on us, and all the years, all the holidays, all the love becomes one beautiful moment.
Saturday, October 10, 2015
Pictures of Puppies
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| Millie and Peggy |
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| She's a Terrier, of some sort.... |
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| Our happy place www.wyldersholisticpetcenter.com |
Saturday, September 26, 2015
My Dad's last lesson
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| My Dad's star |
My Dad had cancer the last few years of his life, but he was very matter of the fact about it. He got a kidney out, had his weekly chemo, a little radiation and generally just did what the doctors told him and lived with it. He still went out to dinner and happy hour with his buddies and walked his dogs. I'd call him and he'd never, ever complain, maybe that he was just a little more tired than usual. So when he had a seizure and asked me to come down to Florida I went, immediately. Having been so close to death with my Mom for so long, I was not prepared at all for what might suddenly happen to my Dad.
His cancer had metastasized to his brain, and all his treatments were going to be stopped. There was talk of rehab and getting him back on his feet. My brothers flew down, we installed handrails and I met with his doctors. He never talked about dying, he didn't want to. He didn't even tell us what or where, if anything should happen to him. I felt like I was the only one that knew the inevitable was around the corner, and that corner was coming up fast. I knew the signs, I knew the feeling, I just knew it.
So, I got on 3 planes in the middle of the night to get myself back down to Florida. When I walked in his room his breathing was heavy, loud and coming through the grit of his teeth. It wasn't difficult for him to breathe air it just had the sound of endurance running out. The groan of a weight lifter pushing through that last set. I dropped my bag and kissed him. I told him that it's okay, that I love him, that he is loved, by me, by so many and that he's an awesome guy. I was here to hold his hand, like how he held mine when I was little and how he was one of the very first hands I ever held. I thanked him for that too. His breathing began to quiet. The sound of intention, concentration, determination all the stuff that has made up my Dad's life quieted down to a slow, relaxed sort of dream, and I laid down near him on the tiny love seat with my shoes still on, next to my suitcase. I drifted in and out of sleep to the softening sound of his breath and the quiet golf game on tv until I woke to a missing sound. The sound of his breath and his life that had let go. My Dad died within two hours after I got there. I got to hold his hand, it was okay, it was kinda beautiful. It was peaceful, it was logical, it wasn't like my Mom.
So when I came home, and walked in my Mom's room I knew what to expect, and it wasn't death.
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| telling Peggy about Dad dying |
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| I knew what to expect, and it wasn't death |
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| Visiting Peggy, celebrating another birthday. |
Labels:
#myDad,
Alzheiner's,
Bob Faganel,
dying,
life and death,
living
Saturday, September 5, 2015
Oliver Sacks and Me
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| "You can't see me, but I know you can feel me, because I'm right here." |
What I didn't know when I first read his book The Man Who Mistook His Wife for a Hat two decades ago is that his words would give me the patience and empathy I would need today, as my Mother continues to delve into the depths of Alzheimer's Disease. My reality become skewed as the natural time line from daughter to mother and grandmother began to wobble The tables turned and I had to care for my Mom as she went backwards mentally and began seeing the world through a completely different lens and time zone than me. It has been an arduous road fought hard with love, but sometimes despair in the lack of understanding. Over the past 12 years I have gone back to Oliver Sacks' words for comfort, insight and strength. He knew disease didn't define the person and that understanding was as important as a cure. Although this quote is not his, he experienced the value of its insight and believed it was important to share, just like the stories he shared about the people he studied.
The animating theme of Sacks’s work is the importance of individuality in medicine. He quoted Sir William Osler with approval – “Ask not what disease the person has, but rather what person the disease has” – and wrote in Awakenings: “There is nothing alive which is not individual: our health is ours; our diseases are ours; our reactions are ours – no less than our minds or our faces.”
Oliver Sacks Obituary
Monday, July 27, 2015
Sunday, July 19, 2015
Our final journey
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| Lois and Peggy |
I actually got very scared the other day, and felt like I couldn't possibly do this anymore. That Peggy was so close to death, and frightened that I had a bit of a panic attack. I am used to the way she looks, and breathes with her mouth wide open, and struggles to swallow, the way she shouts out, the crippledness of her body. I am even getting used to how she can't see anymore, her beautiful blue eyes wandering around in darkness, like her mind. I panicked because I didn't want this to be normal anymore because I am also used to hugging her, caring for her and loving her. If Peggy was my beloved pet, as she is my beloved Mom I would take her to the vet immediately and gracefully help her go. I would hold her hand, kiss her, make sure she knew she was loved. But, instead I have to leave the room, leave her, and say goodbye, only to come back another day and wish the same damn thing. Why is there no way for me to do that for her? I've helped her every step of the way, and I want to be with her until the end, for the final stage of this horrible disease, death.
It's hard to do this alone, and I have since gathered my strength by phoning a few friends and letting my guard down. My very best friend, my husband went with me the next morning with pink roses and held my hand and hers. Today is a new day, and we will just keep walking and continue our journey until we reach the end, whenever that may be.
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