Friday, February 19, 2016

It's been a long time...

It's been a long time since I've posted.  It's been a long time with this disease.  When Peggy
was diagnosed, the average life expectancy was 8 years.  She has had Alzheimer's for at least 13.
How do I know?  I measure it by my oldest daughter's birthday, she just became a teenager on
February 11th. My foreboding thoughts 13 years ago came true when my Mom didn't come see me and my new baby. She was distant because her mind was failing and confusing her, she couldn't make connections either physically or emotionally.

 I haven't felt like writing about this any more. It's become so deeply personal and lonely
that sharing has become difficult.  I feel completely defeated.  I don't try to understand, help, research, raise money, awareness or what not.  I just try to be there.  So, I am.  We are.  I'm there for my Mom, to the bitter end.  Thank you everyone for listening and empathizing, I do care and I do want to fight.  I just hope I'll have more strength to fight this battle once it's over, if ever.
She made this beautiful blanket.

Catholic's now call Last Rites, The Anointing of the Sick.  
Having morning coffee with my Mom
She's got David Bowie eyes.

So many amazing people keep catapulting into the unknown, while we stay down here.

I've been organizing our family photos, so many memories.


I am and always will be her advocate!


video
I don't really want anyone to see my Mom like this, but I have the courage to share it, to raise awareness.  End Stages need to be in the conversation about the care, research and end to Alzheimer's.